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Stand with us

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This fight moves faster with people behind it. Here's how to stand with us — and most of it is free.

Most powerful thing you can do

Follow The Journey

Shawna shares the real fight in new videos every week. Subscribing is the single most powerful thing you can do: it grows the audience everything else depends on.

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Spread The Word

Most families facing a rare diagnosis never hear something like this exists. Share our story with one person who needs it.

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Support the work

Fuel The Research Directly

InnerVara Nexus is a nonprofit, built on nights and weekends. Your gift goes straight into the research and the tools behind it, and helps keep family help free.

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Reach Out

Newly Diagnosed?

Start where we did — we'll help you find your footing.

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Researcher or Clinician?

If this work intersects with yours, we'd like to hear from you.

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Telling this story helps more families find their way here.

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No Fear — Just Faith.

Thank you for standing with us.