For Families
If ALS just entered your life, you don't have to face the maze alone. We've walked it — and we'll help you find your way through.
When Shawna was diagnosed, we had no map. We didn't know what to ask, who to call, or where the real help was. We learned the hard way — and this page exists so you don't have to.
We help you find the right people, tests, and resources, and we'll walk alongside you. We don't interpret genetic results or give medical advice — that's the role of your doctors and genetic counselors, and we'll help you reach the ones qualified to guide you.
Where To Start
Five places we can help you find your footing — built on the road we've already walked, not a list of links.
Understand what testing exists, how to access it, and how to reach qualified genetic counselors.
Find multidisciplinary ALS clinics and specialists who truly know this disease.
Learn what trials are, how they work, and where to look for ones that might fit.
Connect with the people and groups who have already been where you are.
Navigate the logistics — benefits, equipment, and the day-to-day realities.
Answer a few questions and we'll point you toward the people who can actually help. No charge, no medical advice.
FormStill Feeling Lost? Reach Out.
I'll help you figure out your next step and point you to the right people. No charge, no medical advice — just one family helping another.
Get In Touch